Advocacy
   

 

American Dietetic Association (ADA) Endorses May as 

Celiac Awareness Month

 

The food and nutritional professional members of the ADA are instrumental in helping individuals adjust to medically required diets.  They, better than most health professionals, understand how critical the GF diet is to those with celiac disease.

With this in mind, and knowing of the need to raise awareness, the ADA wrote to Congress earlier this month in support of the Celiac Awareness legislation (see below). 

There's so much that we are able to do when we work together as a community and with other organizations who share the goal of improving the health and well-being of those with celiac disease.

March 12, 2008

The Honorable Nita Lowey

United States House of Representative

Washington, DC 20515

Dear Ms. Lowey:

The American Dietetic Association is the largest organization of food and nutrition professionals in the United States. We promote optimal nutrition and well being of all people, by relying on evidence-based practices and policies. To that end, ADA is pleased to support H. Con. Res 70 that would support the goals and ideals of National Celiac Awareness Month, encourage screening and early detection of celiac disease, and promote Federal funding for celiac disease research.

Celiac disease is an autoimmune condition, where the body's immune system starts attacking normal tissue, such as intestinal tissue, in response to eating gluten, a protein found in wheat, rye, and barley. The only known treatment for celiac disease is to follow a gluten-free diet and registered dietitians play a vital role in helping people with celiac disease successfully follow this treatment plan. The NIH Consensus Development Conference on Celiac Disease held in June 2004 found that consultation with a skilled dietitian and identification and treatment of nutritional deficiencies were key elements in the management of celiac disease.

H. Con. Res. 70 is a positive step in acknowledging the prevalence of celiac disease in the United States, and the importance role registered dietitians play in helping people with celiac disease successfully manage this disease.

We look forward to working with you and your staff on this issue.

Sincerely,

Ronald E. Smith

Director, Government Relations

American Dietetic Association

 

 

National Commission on Digestive Diseases Releases Draft Report

    to NIH / NIDDK in Setting Research Priorities

 

February 8, 2008 -- The National Commission on Digestive Diseases has 
released a draft report entitled, "Opportunities and Challenges in 
Digestive Diseases Research: Recommendations of the National 
Commission on Digestive Diseases."  
  
The ACDA applauds the Commission for its detailed report which 
highlights the need for research in specific areas, including celiac disease.
It reflects the research priorities of the entire digestive disease
research community.  Once finalized the report will help guide the direction of 
NIH-supported research initiatives - and hopefully those of other digestive
disease research groups - for the next decade. 

ACDA members -- Dr. Alessio Fasano, Dr. Peter Green, Dr. Joseph Murray,
and Dr. Martin Kagnoff participated in working groups or served as advisors
to the Commission. 

The public has until March 8, 2008 to submit comments on the report.    

The ACDA will be carefully reviewing the recommendations and submitting
comments.   
Read the Draft Report 

 

Archives

 

U.S. Celiac Community Mourns the Loss of "Gluten Free Gourmet" Bette Hagman

 

American Celiac Disease Alliance Announces New Members

 

FDA Reports to Congress on Cross-Contamination

 

Federal Employee Health Plan Now Covers Dietitian Services

 

Press Release on Passage of the Food Allergen Labeling and Consumer Protection Act

 

Representative Lowey Thanks Task Force for Help with Labeling Bill

 

House Appropriations Committee Hears First Ever Testimony on Celiac Disease

 

Task Force Testimony on Juvenile Diabetes and Celiac Disease

 
         

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This site was last updated February 23, 2008